Research
Several research and pharmaceutical companies are conducting studies and research that will benefit the OPMD Community. The following are some of those organizations. If you discover research information to share, Contact Us.
Community Registry
Join the OPMD Association Community Registry! To participate, simply fill out the form. Should we become aware of a research opportunity, we will email you with the information that you will need to contact the research entity directly. We will not contact the research organization on your behalf.
Pharmaceutical Companies
Benitec Biopharma, benitec.com
Seelos Therapeutics, seelostherapeutics.com
Prime Medicine, primemedicine.com
Research Institutions
National Institute of Health, nih.gov
Current Research Studies
NYU/Benitec Study, clinicaltrials.med.nyu.edu
Other Nonprofits
Muscular Dystrophy Association, mda.org (Read about a grant we were awarded from MDA)
EveryLife Foundation for Rare Diseases, everylifefoundation.org
NORD (National Organization for Rare Diseases), rarediseases.org
Research Library
Coming Soon!
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