OPMD Awareness Day is almost here! Register for our webinar here: View Event
OPMD is a rare, genetic, degenerative disease affecting adults with symptom onset beginning between 40-50 years. Many have the following symptoms:
Video courtesy of Dr. Anita H. Corbett
The mission of the OPMD Association is to advocate for and serve people affected with Oculopharyngeal Muscular Dystrophy (OPMD) by providing education, resources and programs and by creating partnerships with research institutions and corporations in order to discover treatments and a cure for OPMD.
To advocate for and serve the OPMD Community and also to partner with those committed to developing treatments and finding a cure
The OPMD Association provides information and resources to patients, caregivers and family members. We work to foster partnerships with clinicians, researchers and pharmaceutical companies.
OPMD Association helps those affected by OPMD
Meet OPMD patients, caregivers, advocates and clinicians who share their journey with this disease.
Putting the resources you need in your hands
The OPMD Association provides help finding care centers and clinicians in your area, medical equipment options, therapies, other nonprofit organizations, testing and conferences.
Find out who is working on OPMD
The OPMD Association partners with pharmaceutical companies and research institutions; provides information regarding current and future studies, and shares links to OPMD articles.
Become an OPMD Champion! Advocate, Volunteer, Participate
Our mission is to advocate for and serve people affected with Oculopharyngeal Muscular Dystrophy (OPMD) by providing education, resources and programs and by creating partnerships with research institutions and corporations in order to discover treatments and a cure for OPMD. The OPMD Association is currently an all-volunteer organization. We need people with all types of skills. Help us advocate for the OPMD Community!
Attend conferences, awareness days, fundraisers and webinars
Sign up for OPMD Matters
OPMD Association Newsletter
Find us on social media!
