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OPMD Awareness Day 2024

September 23

Large group of happy people holding a sign with the OPMD Association logo

Become an OPMD Champion!

Help us advocate for the OPMD Community

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September 23 is a day that the OPMD Community comes together to raise awareness of Oculopharyngeal Muscular Dystrophy and to celebrate all members of our community.

Raising OPMD Awareness is as easy as wearing blue and gold. So share a photo with your family, friends and colleagues. We’ll put your photo on this page. Send your photo to info@opmd.org.

Ways You Can Get Involved!

On OPMD Awareness Day and Every Day, OPMD Association

  • Acknowledges and Advocates for all members of the OPMD community, especially those who have OPMD and their caregivers.
  • Creates awareness opportunities for the public, policy makers, regulators, pharmaceutical representatives, researchers, clinicians, RARE disease organizations and anyone with an interest in changing the future of Oculopharyngeal Muscular Dystrophy.
  • Strives to improve services, research, drug development, and advocacy policies

OPMD is an all volunteer organization. We need you to keep the OPMD momentum going. Help us meet our  $2,000.00 OPMD Awareness Day Advocacy Goal.

#OPMD
#OculopharyngealMuscularDystrophy
#OPMDAwareness
#OPMDAwarenessDaySept23

Details

Date: September 23