September 23 is a day that the OPMD Community comes together to raise awareness of Oculopharyngeal Muscular Dystrophy and to celebrate all members of our community.
Raising OPMD Awareness is as easy as wearing blue and gold. So share a photo with your family, friends and colleagues. When you share the photo, be sure to add the hashtags below under Post and also link to our upcoming webinar: https://opmd.ejoinme.org/register
Join us on Monday, September 23rd for our inaugural webinar moderated by OPMD Association Spokesperson, Maureen Costello
Day: Monday, September 23, 2024
Time: 12p EST
Overview: This important information session will provide patients, their families, and care teams with clinical insights, patient perspectives, clinical trial updates, and resources.
Dr. Matthew Wicklund, M.D., FAAN Professor of Neurology and Vice Chair for Research UT Health San Antonio in Texas, will give an overview of OPMD and discuss current clinical guidelines for OPMD.
Dr. Jerel Banks, M.D., Ph.D. Benitec Biopharma Chief Executive Office & Chairman of the Board, will share Benitec’s clinical development program for its investigational gene therapy agent BB-301.
Maureen Costello, an OPMD spokesperson and patient diagnosed in 2020, shares her perspective to empower others to be proactive in their journeys to health and well-being.
Melissa Lopez, a voice for those who are underrepresented, and an OPMD.org volunteer, shares perspectives from her journey as someone newly-diagnosed with OPMD in 2024.
REGISTER NOW AT:
https://opmd.ejoinme.org/register
OPMD is an all volunteer organization. We need you to keep the OPMD momentum going.
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#OculopharyngealMuscularDystrophy
#OPMDAwareness
#OPMDAwarenessDaySept23
