OPMD Awareness Day is on September 23!

There’s never been a better time to become an OPMD Champion.

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Help us advocate for the OPMD Community

September 23 is a day that the OPMD Community comes together to raise awareness of Oculopharyngeal Muscular Dystrophy and to celebrate all members of our community.

Raising OPMD Awareness is as easy as wearing blue and gold. So share a photo with your family, friends and colleagues! When you share the photo, be sure to spread awareness about our upcoming webinar and add the following hashtags: #OPMD #OculopharyngealMuscularDystrophy #OPMDAwareness #OPMDAwarenessDaySept23

Ways you can get involved

Share on Social Media

There are so many ways to spread the word! Just be sure to add the following hashtags to your posts: #OPMD
#OculopharyngealMuscularDystrophy #OPMDAwareness #OPMDAwarenessDaySept23

Social Media Posts

Help us raise awareness on your social media platform of choice by downloading and sharing these posts with your community.

Profile Badge

Let your network know about OPMD Awareness Day by changing your profile photo to our dedicated badge.

Facebook Fundraiser

Hosting a fundraiser for the OPMD Association raises awareness and vital funds needed to operate our 100% volunteer-run organization.

Contribute to the Community

On OPMD Awareness Day and Every Day, OPMD Association

  • Acknowledges and Advocates for all members of the OPMD community, especially those who have OPMD and their caregivers.
  • Creates awareness opportunities for the public, policy makers, regulators, pharmaceutical representatives, researchers, clinicians, RARE disease organizations and anyone with an interest in changing the future of Oculopharyngeal Muscular Dystrophy.
  • Strives to improve services, research, drug development, and advocacy policies.
Large group of happy people holding a sign with the OPMD Association logo

OPMD is an all-volunteer organization. We need you to keep the OPMD momentum going.