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X-WR-CALDESC:Events for OPMD Association
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DTSTART;VALUE=DATE:20260707
DTEND;VALUE=DATE:20260712
DTSTAMP:20260422T163257Z
CREATED:20260217T042628Z
LAST-MODIFIED:20260422T163257Z
UID:3346-1783382400-1783814399@opmd.org
SUMMARY:19th International Congress on Neuromuscular Diseases (ICNMD)
DESCRIPTION:Location:\nCongress Centre of Florence\, “Fortezza da Basso” \nAbout:\nThe ICNMD International Congress on Neuromuscular Diseases is organized on behalf of the Specialty Group on Neuromuscular Diseases (NMD) of the World Federation of Neurology (WFN). \nThe aim of the ICNMD Congresses is to offer attendees an updated view on neuromuscular disorders and that networking opportunities increase their international experience and collaborations. The scientific and program committee are invited from all continents around the world to enable this wide spectrum.
URL:https://opmd.org/event/19th-international-congress-on-neuromuscular-diseases-icnmd/
CATEGORIES:Advocacy & Awareness
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20260818
DTEND;VALUE=DATE:20260819
DTSTAMP:20260422T163246Z
CREATED:20260419T024816Z
LAST-MODIFIED:20260422T163246Z
UID:3420-1787011200-1787097599@opmd.org
SUMMARY:OPMD Association Celebrates 4 years
DESCRIPTION:Help us advocate for the OPMD Community!
URL:https://opmd.org/event/opmd-association-celebrates-4-years/
CATEGORIES:Advocacy & Awareness
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20260923
DTEND;VALUE=DATE:20260924
DTSTAMP:20260422T163239Z
CREATED:20260419T023847Z
LAST-MODIFIED:20260422T163239Z
UID:3411-1790121600-1790207999@opmd.org
SUMMARY:OPMD Awareness Day 2026
DESCRIPTION:Become an OPMD Champion!\nHelp us advocate for the OPMD Community\nCountdown to OPMD Awareness Day\n00\ndays\n00\nhours\n00\nminutes\n00\nseconds \nWatch the previously livestreamed webinar here \nSeptember 23 is a day that the OPMD Community comes together to raise awareness of Oculopharyngeal Muscular Dystrophy and to celebrate all members of our community.\n \nOPMD Awareness Day Webinar – Register Now!\nJoin us on Monday\, September 23rd for our inaugural webinar moderated by OPMD Association Spokesperson\, Maureen Costello \nDay: Monday\, September 23\, 2024\nTime: 12p EST \n \nOverview: This important information session will provide patients\, their families\, and care teams with clinical insights\, patient perspectives\, clinical trial updates\, and resources. \n \nDr. Matthew Wicklund\, M.D.\, FAAN Professor of Neurology and Vice Chair for Research UT Health San Antonio in Texas\, will give an overview of OPMD and discuss current clinical guidelines for OPMD. \n \nDr. Jerel Banks\, M.D.\, Ph.D. Benitec Biopharma Chief Executive Office & Chairman of the Board\, will share Benitec’s clinical development program for its investigational gene therapy agent BB-301. \n \nMaureen Costello\, an OPMD spokesperson and patient diagnosed in 2020\, shares her perspective to empower others to be proactive in their journeys to health and well-being. \n \nMelissa Lopez\, a voice for those who are underrepresented\, and an OPMD.org volunteer\, shares perspectives from her journey as someone newly-diagnosed with OPMD in 2024. \nREGISTER NOW AT:\nhttps://opmd.ejoinme.org/register \nOther Ways You Can Get Involved!\n\nRegister and watch our upcoming webinar using this link: https://opmd.ejoinme.org/register\nShare your OPMD story\nPost on your social media\n\nChange your profile photo to our OPMD Awareness Day image above\, and post with these hashtags: #OPMD\, #Oculopharyngeal Muscular Dystrophy\, #OPMDAwareness\, #OPMDAwarenessDaySept23\n\n\nJoin the OPMD Community Registry\nShare your resources and clinician information\nHost a Facebook Fundraiser\nShare information about OPMD Awareness Day with your friends\, family\, community using this link: https://opmd.org/event/opmd-awareness-day-2024/\nParticipate in Research\n\nOn OPMD Awareness Day and Every Day\, OPMD Association\n\nAcknowledges and Advocates for all members of the OPMD community\, especially those who have OPMD and their caregivers.\nCreates awareness opportunities for the public\, policy makers\, regulators\, pharmaceutical representatives\, researchers\, clinicians\, RARE disease organizations and anyone with an interest in changing the future of Oculopharyngeal Muscular Dystrophy.\nStrives to improve services\, research\, drug development\, and advocacy policies\n\nOPMD is an all volunteer organization. We need you to keep the OPMD momentum going. \n\nDonate Today\n \n#OPMD\n#OculopharyngealMuscularDystrophy\n#OPMDAwareness\n#OPMDAwarenessDaySept23
URL:https://opmd.org/event/opmd-awareness-day-2026/
CATEGORIES:Advocacy & Awareness
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20260925
DTEND;VALUE=DATE:20260927
DTSTAMP:20260422T163232Z
CREATED:20260419T025214Z
LAST-MODIFIED:20260422T163232Z
UID:3424-1790294400-1790467199@opmd.org
SUMMARY:MDA Engage Symposium
DESCRIPTION:Visit the OPMD Association’s OPMD Informational Booth at this 2026 MDA Engage Symposium in Chicago
URL:https://opmd.org/event/mda-engage-symposium-2/
CATEGORIES:Advocacy & Awareness
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20261023
DTEND;VALUE=DATE:20261025
DTSTAMP:20260422T163226Z
CREATED:20260419T025417Z
LAST-MODIFIED:20260422T163226Z
UID:3426-1792713600-1792886399@opmd.org
SUMMARY:MDA Engage Symposium
DESCRIPTION:Visit the OPMD Association’s OPMD Informational Booth at this 2026 MDA Engage Symposium in Dallas
URL:https://opmd.org/event/mda-engage-symposium-3/
CATEGORIES:Advocacy & Awareness
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20261107
DTEND;VALUE=DATE:20261108
DTSTAMP:20260422T163217Z
CREATED:20260419T025505Z
LAST-MODIFIED:20260422T163217Z
UID:3428-1794009600-1794095999@opmd.org
SUMMARY:MDA Engage Symposium
DESCRIPTION:Visit the OPMD Association’s OPMD Informational Booth at this 2026 MDA Engage Symposium in Stanford
URL:https://opmd.org/event/mda-engage-symposium-4/
CATEGORIES:Advocacy & Awareness
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20261113
DTEND;VALUE=DATE:20261116
DTSTAMP:20260422T163421Z
CREATED:20260419T022658Z
LAST-MODIFIED:20260422T163421Z
UID:3409-1794528000-1794787199@opmd.org
SUMMARY:European Neuromuscular Centre (ENMC) OPMD Clinician Workshop
DESCRIPTION:ENMC Workshop #298 – At this invitation-only event; Clinical care guidelines\, Outcome measures\, and Clinical trial readiness in Oculopharyngeal Muscular Dystrophy (OPMD) will be discussed by an international collective of OPMD experts. The OPMD Association will present on “The Patient Perspective” from the USA standpoint.
URL:https://opmd.org/event/european-neuromuscular-centre-enmc-opmd-clinician-workshop/
CATEGORIES:Advocacy & Awareness
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20270321
DTEND;VALUE=DATE:20270325
DTSTAMP:20260422T163202Z
CREATED:20260419T022337Z
LAST-MODIFIED:20260422T163202Z
UID:3407-1805587200-1805932799@opmd.org
SUMMARY:2027 MDA Clinical & Scientific Conference
DESCRIPTION:Join us at the 2027 MDA Conference in Orlando\, FL. Visit the OPMD Association’s OPMD Informational Booth.
URL:https://opmd.org/event/2027-mda-clinical-scientific-conference/
CATEGORIES:Advocacy & Awareness
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