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OPMD Awareness Day 2023

Name: OPMD Awareness Day 2023
Start: 2023-09-23T00:00:00-05:00
End: 2023-09-23T23:59:59-05:00

September 23, 2023

Become an OPMD Champion!

Help us advocate for the OPMD Community

Countdown to OPMD Awareness Day

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September 23 is a day that the OPMD Community comes together to raise awareness of Oculopharyngeal Muscular Dystrophy and to celebrate all members of our community.

Raising OPMD Awareness is as easy as wearing blue and gold. So share a photo with your family, friends and colleagues. We’ll put your photo on this page. Send your photo to info@opmd.org.

Ways You Can Get Involved!

Share your OPMD story
Post on your social media
- Change your profile photo to our OPMD Awareness Day image above, and post with these hashtags: #OPMD, #Oculopharyngeal Muscular Dystrophy, #OPMDAwareness, #OPMDAwarenessDaySept23
Join the OPMD Community Registry
Share your resources and clinician information
Host a Facebook Fundraiser
Share information about OPMD Awareness Day with your friends, family, community using this link: https://opmd.org/event/opmd-awareness-day-2023/
Participate in Research

On OPMD Awareness Day and Every Day, OPMD Association

Acknowledges and Advocates for all members of the OPMD community, especially those who have OPMD and their caregivers.
Creates awareness opportunities for the public, policy makers, regulators, pharmaceutical representatives, researchers, clinicians, RARE disease organizations and anyone with an interest in changing the future of Oculopharyngeal Muscular Dystrophy.
Strives to improve services, research, drug development, and advocacy policies

OPMD is an all volunteer organization. We need you to keep the OPMD momentum going. Help us meet our $2,000.00 OPMD Awareness Day Advocacy Goal.

#OPMD
#OculopharyngealMuscularDystrophy
#OPMDAwareness
#OPMDAwarenessDaySept23

Details

Date: September 23, 2023
: Event Category:
Website: https://opmd.org/events